Showing posts with label Insulin Pump Site. Show all posts
Showing posts with label Insulin Pump Site. Show all posts

Monday, December 19, 2011

Bad. Site. : (

I think she thinks it's my fault sometimes.  I got ready to change Mary Claire's pump site last night, and the first site (needle) I put in...slid right out.  They never do that. : (  Of course..it bled.  And she cried.  Then, I opened another (really expensive) package (wasting the set of tubing that comes with), and tried again.  This time, the needle bent straight down-I'm guessing she squeezed her bottom in anticipation, and when you hit muscle...forget it.  I couldn't get the needle out of the tubing to save my life..so we pulled the site again.

This time, I had to hold a tissue over the blood, and comfort her.  Bless her heart.  This is when the sadness comes out.  She asks the barrage of questions (the same ones I ask God about): Why does she have to have diabetes?  Why does she have to wear a pump?  Why does she have to change her site?  Why her?
Our medical waste.  For one site change.
We had to wait a while to try for the third time.  I had to convince her it would work, and we'd try something different (as opposed to the last 864 times I've changed her site).  She psyched herself up, and we opened another set, and got another site ready (had an IV Prep emergency: whoever stocked our last Medtronic shipment mixed up the new IV Prep pads with the old-and recalled-alcohol pads!!  Stress. and Guessing.).  Finally...we got a good site.  I also had to set her temporary basal UP after that awful drama, since adrenaline drives her blood sugar skyward.

Then she laid on the bed with me listening and feeling the baby move.  I knew she just needed some time and attention before bed-what we all need.  But today?  Most especially

I hate that those bad moments can overshadow our good ones.  We've had some sweet memory making despite all our bad lately (we won't even go there-I don't need the stress!).  She had her fourth grade musical (and I made her a shiny "M" shirt last minute to match her Eastside High cheer skirt-that's no longer so cool):
Right in the middle, looking at me! ; )
We made her an ornament to trade at Girl Scouts:
It was only about 2 inches after this Shrinky dink shrank!  LOVE these things!
And..she had a patch ceremony and got new patches for her uniform!
Thank you, God, for the good things we get to experience.  ..and Thank you for a pump to better control blood sugars, the supplies we need, a beautiful 88 this morning, and a daughter who'll let me try it-even a third time.

Friday, July 29, 2011

Mmm...Sandy Chocolate Pies

Laundry was on my agenda this morning! : )  I got up around 8, and ran down to the laundry to get some started.  I just had to wash swim stuff and a load of light things-Ethan had two shirts with stuff on them, and I didn’t want the stains to sit too long!

Then, we packed up our van.  Today was our last day at the beach. : (  I packed one suitcase with all we’d need to shower and change at Rita’s beach house after our sandy bodies trekked back from the beach.  We dropped off Hercules (Clay’s new hermit crab) so he didn’t bake in the van, and headed down to the beach!
Under the pier : )

Mary Claire and her daddy out in the waves

Ethan building roads and tunnels

Mary Claire planting a Garden.  She even watered it. ; )

This is when the girls took our chairs.  Pfttth. : P

He smiled, he smiled, he smiled for me!  (He's holding a plate of barnacles!)
It was a beautiful (HoT!) day-the water was warmer today, and it was perfect.  We (I with a little help from my little friends) made a big Pit Pool (very unofficial term! haha!).  We dug out sand, and gave it a protective wall.  It took us over an hour to get this far:


but then...in less than an hour...it was gone.  I mean, leveled and beautiful beach again.  It still always amazes me-the power of the ocean.  And that we happily play at its feet shore.  Even with sharks and jellyfish, it draws us in.  That beautiful danger, that is ready to turn on us in an instant.

Kinda like diabetes when you think about it.  We just keep it bouncing inside of normal-not too low, not too high.  And, boy have we had a week!
Sandy Site.
We take off Mary Claire’s pump while she is in the ocean, and use the little plug to block off her site (we’ve gotten sand in it before...not fun!).  But having that pump off, having her unhooked from her lifeline of insulin-drives her CrAzY high.  I do NOT look forward to her post-summer a1c. : (  I hate having that to think about all the time.

We immediately hook her up after swimming, and start pushing insulin.  I start conservatively, but then an hour later, I’m just pushing.  I have to get her down for dinner so she can eat with everyone.  And when she’s high..she’s SO irritable and whiny and uncooperative.  I’ve promised to love her no matter the number on the meter, but only the Good Lord helps me through.  She can be so difficult when she’s not happy (or too high or too low!).  I know how I feel when I am desperate to eat, so I can’t even imagine how she feels.  I try to sympathize, I really do.  I’m sure I still have room for improvement.

Yesterday, we lost a site.  Right at the end of our pool time at the water park, she unplugged to go back in one last time, and off it came.  I knew it could happen, so I wasn’t surprised.  I just knew that then the clock was t-i-c-k-i-n-g.  I hate that too.

Ok, anyway, you get it.  Back to vacation..

The kids played, and I fell asleep in a chair as the surf came up and washed my feet.  It was the sound, the kids playing, the warm sun, the “chocolate pies” Mary Claire was “feeding” me:
the long days lately and the hard work on the Pit..it was all too much!  Ches touched my hand, and I jumped.  I knew I was close to falling asleep, but really doing it?  Two totally different things when your kids are that close to powerful danger! 

Then I came up and laid under the pier and read for a while, with my legs hanging out in the sun.  This, my friends, is how you tan the backs of your legs.  Or like this:
Catch the mama in the top right.  This is how you tan your back.  Off the sand.  This will be me someday..in someone else's pictures!
We ended our day with warm showers, and a goodbye family dessert of layered ice cream sandwiches (with cool whip and caramel topping-DeLiSH!), for Ches’ cousin David’s birthday.  We took one last picture of all the kids there (we had to narrow it to post-1984 kids, since..aren’t we all kids? ha!):

Bye-bye, Ocean City, we’ll see you next year!
Love you, the Jones family