Wednesday, September 10, 2014

Walk to Cure is THIS Saturday!

Illness struck.  It came in like lightning, but stayed like a flood. : (  It has been no bueno with our family this week.  Ethan had the tummy bug last weekend, Carter started Sunday, Mary Claire and Clay on Monday..and Momma on Tuesday.  Blech!  Praying for strength to keep going.

We are getting sooo close to our Walk to Cure Type 1 Diabetes this weekend!  Our shirts got printed today, so we'll pick them up in the morning, sort and deliver!  Here is the front:
And I always order banners for the tent from Vistaprint..and sometimes pay a HUGE super-fast delivery charge to get them here quickly.  But I checked into Staples, and they print them the SAME Day in-house! : ) They are the same (and the website you order the banners from is even IDENTICAL!!).  Happy!  Skipping the $30 delivery fee! : )

I sent an email out to walkers today with all the details (where to park and where to go, when to arrive, when to register, when to show up for pictures! ..what to wear, a map, and all of the fun things to do there, etc.)!

We did get team bows made again, Sequoia is awesome!!  I tell her every year, and she needs to be in big business..but she's all, "It's a side job, I am a teacher!"  Don't let her fool you, she's awesome, and her prices are awesome-r! ; )

:wish I'd bothered to take a picture of all the red/white chevron bows to show you:
:adding it to Things to Do:

We are so thankful for the friends and families who are supporting our family this year!  From scouts to church and school friends, old friends and new friends..we are blessed.  I'm so thankful Clay will have at least a couple friends walking with him.  He felt left out last year right after diagnosis.  In a hot pink shirt.  

We let him make some major shirt decisions this year..from the color to style, etc.  I think he wanted Super Mario Bros. fonts, but Mary Claire just flat out rejected that..so hopefully we met in the middle.  This is definitely making things harder! : )

If you are walking with us, THANK YOU!!  We are so excited!  The high is only 70 degrees, so it may not be so warm on Saturday morning..we are hoping to get some hot chocolate for you!

If you aren't walking with us, please say a prayer for us!  For everyone's safety as we walk (on the UA campus streets!), for a CURE for our kids, and for all the teams to have fun and cheer each other on..no competition. ; ) I love all our JDRF kids, and I can't compete.  

If you'd still like to join our Walk to Cure team this year, here is the link.  If you are feeling generous, you can always donate to JDRF with the same link!! : )

Do nothing from rivalry or conceit, but in humility count others more significant than yourselves. Let each of you look not only to his own interests, but also to the interests of others.  Philippians 2: 3-4
 

Tuesday, August 12, 2014

Schedule Love

Hey, y'all!  I hope you had a great..MondayEeek!  I know it's usually the worst day..back to work/class and all.  I have a *secret*.  I kinda like Mondays.  Is that weird?  I'm into schedules (all the organized things happening in a timely fashion) and it really freaks me out all the hanging loose that happens on the weekends.  I know.  I'm weird.  I have never confessed to being normal.

When we have new seals put on, they'll clean it, and it'll be just like new.  Solid Silver = gorgeous!!
So, today some family friends shared..and we got Mary Claire a flute!  She has decided its her heart's desire to learn to play this fascinating (and gorgeous!) instrument.  She will be in band and hopefully master this sweet little pure silver beauty.  I am praying she sticks with it.  Number one because kids in band really bond together, number two because band kids are good kids, and number three because I am still friends with band friends and they grow up to be great people!  Oh yeah, and because she will have a life skill and appreciate music! : )  Thank you, Rachel, for bringing it over!

We like to Create.
Then we had Mom's Lunch for all the moms of kids with diabetes!  It's always (ok..usually!) the best!  We get to learn and help and counsel and laugh (and have Jose's chips and salsa!)..what's better?  Food makes everything better!  (you did not hear me say that.) (Especially as a mom of kids with diabetes.)  Seriously, they are some of my very best friends..I can even tell them some crazy stuff and send them the little poopy emoji, and they do not judge.  They are the best I tell you.  : )

Painted with this girlie on Saturday!
And then my mom came to get the two big kids, they were excited!!  They haven't gotten to spend time at my parents' this summer, it's been SOO busy!  Vacations, camping, swimming, friends..(and my parents have been busy partying too!) I'm sure they are playing, eating, and having a blast!  It's the one night I don't have to check blood sugar, so I'm kinda hyper..can you tell?!  haha!

Leigh is so sweet!  She did the wood with painted words (which were painstakingly penciled, rubbed, then painted), and Be The Good is a different color inside the quote!  So pretty.  I was so consumed finishing my painting (an HOUR late!!) I missed all the other pictures.
My good friend Tiffany just moved to a new house (we've had Bible study together for a few years, and taught First Communion together two years ago!), and I've been helping her unpack, organize, and get ready for her son Eli's birthday party.  I went over there this afternoon to help again (yes, I secretly love organizing books and shelves and duck tape rolls and pencils and hanging pictures and painting her vases and a chalkboard wanna-be Dana Tanamachi. .for reals).  Her husband has pretty high expectations (ok, impossible!), so I'm doing my best to help her pull the downstairs together for his party TWO WEEKS after they move in.  It's been months since I moved, and I STILL have boxes!  (he wants them all of theirs unpacked..eekk!)  Ok, so it makes me thankful for my husband and his l-o-w expectations.  (Is that bad?)
We all got to pick different projects to work on, and they were so helpful!  The owners (Katie and her husband) are amazing!!
And then the remainder of my family had dinner and split.  Ches took Ethan to the movies to see Planes, and I went to the store with Baby Carter.  I love having no time limit (except for baby exhaustion).  We looked at electrical parts for Tiffany's lamp, bought clear organizers for drawers, 9 boxes of 60 watt light bulbs (you DO know they won't be sold after December 31, 2014, no?)  (100 watt bulbs were gone 1/1/13), new ice packs for school lunches, tiny little gifts, stickers, milks..and some food.  Fun stuff!

I did the Birthday Cupcake sign, and she did a chevron frame with chalkboard paint!  SO FUN!!  (Should I tell you it was pouring down rain and my hair was crazy frizzy?  And I'm all, "Look what I made!!")
Finally home, Ethan asked me to read to him.  My back was killing me, so I said I'd read on my bed (moon-party mama).  He brought down his Bible and Calvin and Hobbes, the essentials if your name is Ethan, ha!  We read from Matthew.  We had amazing conversation about letting your light shine (he remembered the song!).  AND about Matthew 5:27-30 (if your eye causes you to sin, poke it out!).  We talked about how when he plays his Nintendo DS he gets sooo mad when Carter touches the screen in the middle of his game.  I tell the kids (a lot) that if something makes you sin or you like the thing more than people, you should throw it away.  (Conviction: iphone!)  My sweetie fell asleep on my bed, hopefully sleeping sound in Jesus.

A wonderful day.  (Guess I'm not an introvert?)  I'm telling you, I like my Mondays.  *Love* weekends, just love back-to-the-schedule maybe more?  (If I can overlook your jeggings, Downtown Abbey or Star Wars thing..you can overlook this.)  It's why we can get along, heehee.  That and my cookies are pretty good.  And I can help you arrange your furniture, yo!

Hope your Tuesday is rockin'!  Hugs!

The kingdom of heaven is like treasure hidden in a field. When a man found it, he hid it again, and then in his joy went and sold all he had and bought that field.  Matthew 13:44

Saturday, July 26, 2014

Diabetes Notebook and a MATH Lesson on Corrections

So..school supplies are showing up on shelves.  I'm getting New-Crayon-Crazy already!  Yippeeee, I *heart* new crayons!!  New notebooks, folders, paper, pencils, scissors, glue, colored pencils..and all things Diabetes are getting ready for that first bell.

I have a Diabetes Notebook (actually called a Care Guide : ) that I made Mary Claire's first year of preschool (at three years old, gah!), and I just keep updating every year.  Now, Clay needs one too.  Boo.  And they'll be at two schools, TWO NEW nurses this year.  Eeek!!

I took some pictures of the table of contents and the pages in the book (yes, she was into peace signs last year..):
 
First is the Table of Contents, and then there are tabs for each section.  I just printed this on cardstock, then added stickers.  Cause I like to p-a-r-t-y on paper.

Second is our Emergency and Doctor Contacts.  All our numbers, doctors' phone numbers, hospital numbers, family members, Minimed help line, pharmacy..goes on down the line.  Hopefully, they can find SOMEONE to help them, ha!  No, I resisted adding 9-1-1.  And no..I didn't take a picture.  I already have enough crazy people calling..I don't need any more!  Well, I didn't mean you, of course. ; )
Symptoms to Watch is important..especially for substitute teachers AND nurses.  Just in case.
These are 4x6 cards I print (and tape a current photo onto) for specialty teachers (PE, Music, Library, Counselor, etc.) and the office.  Just in case there is a substitute in there too.  (The card even goes outside with the recess teacher on duty, just in case there is a sub for another grade level teacher.)  They usually tape them above their desks or put in their substitute notebooks.  Weird things only happen when the teacher is gone.  Trust me.  All our contact numbers are on the back of each card also.  I'd rather 18 people call my cell phone about her acting weird at lunch than them try desperately to find a nurse on duty.  Seriously.  My caption is almost as big as my picture..cool.
And then..printed instructions for administering Glucagon.  'Cause have you ever tried to unfold and read the teensy, wrinkly, tissue paper instructions that come in that little red box?  When your child is passed out?

Page 2.  Notice Call Mom.  So I can freak the heck out with you too.
Section Three is Quick Reference.  This is the Morning Blood Sugar Check chart (like for Dummies.)  If her blood sugar is this..do that.  Makes it hard to mess up.

Chart 2: Lunch Blood Sugar Check for Dummies.  You'd think someone could use a regular font or something.  I know..so boring though! 

 
Afternoon Blood Sugar Check.  Ditto.
Last Chart: Correction Ratios for a high.  Find the time of day, then the BG, and use the correction required. 
**Note: you can also do the reverse if needed.  If your child is under their blood sugar goal, you can reduce their basal to bring them back up to range.  Example: if Mary Claire's bg is 90 at her lunch check, she's 10 BELOW her target range.  I can reduce her basal to 90% (since she gets a 1.05 units/hour during lunch time) for an hour, and it'll reduce what she receives by a .1 unit.  So..she'll rise in bg about 9.5 points over an hour, since her sensitivity (how she reacts to 1 unit of insulin..one unit brings her bg down 95 points) is 95.  Make sense?  

*Math Lovers:  Just use their sensitivity rate to figure.  If she was 80, I'd reduce to 80% for an hour, if she was 75, I'd reduce to 75% for an hour..etc. It works if she's getting around a unit per hour.  If not..keep reading.

*More Math Fun:  If your child's sensitivity is 200, they get a .1 correction for every 20 they are over their goal (usually 100).  If their bg is 140, they get a .2 correction, if they are 220, they get a .6 correction.
IF they are LOW, and their bg is 80 (20 under goal), you could reduce their basal by .1 unit/hour to raise them without food (so take their basal rate per hour, subtract .1, and figure the percent you need to adjust to.. If their basal is .65/hr, you'd reduce to 85% for an hour since 55/65 equals .85).
*Feel like eighth grade algebra?  I know..FUN!!  Ask if you have questions of if it's plain as mud.
Then I have a section (you know..just in case) on checking blood.  Assuming she's passed out?  Acting hyper and won't obey?  Substitute when she was four?
Informing them..in case they didn't use the Quick Reference Chart.
What the heck..I added pictures for how to check her blood too!  It's a big fold-out poster of instructions.  Pin the blood on the finger! : )
And..how to give boluses on her pump.  These were in here from when she couldn't do it herself.  I just leave them in..for posterity's sake. : ) I used to have huge picture pages of the pump and the functions..but she doesn't need them since she boluses herself..and it made the notebook much thinner to take them out.  And didn't pop open my 3 rings.  I hate it when that happens.  And then your paper comes out the cracks. : P
Last section: Snacks and Carbs.  I always have teachers ask me what kind of snacks she can have.  Should they buy *special* things?  (NO!)  Just give her what everyone else has, and she gets insulin for it.  Here is a handy guide.  I adjust the bolus columns (for before and after 10 am) every year.  As she grows..and becomes more insulin resistant.
This is what I print, cut into fourths, and send in her lunch box. (and yes, Clay's too)  EVERY. DAY.  I write in her lunch foods, the carb counts of each food plus the total carbs, and figure the insulin/bolus.  If she's high or low, she writes in the correction.  (Like +.3 or -.1) 
I felt like I needed to cover all the bases in their care guides, even if the nurse at the school had known my child for five years...I had to be prepared for a substitute at all times.  Better an ounce of prevention than a pound of cure.  (ok..a pound of driving up to the school to pick up my child because someone didn't have a clue what to do with their blood sugar!)  And believe me, the notebook came in HANDY a LOT!! : )

I will say there are some times that a phone call to mom is the only solution, so I tell them to call for ANY LiTTLE THiNG.  Sometimes I need the school nurse to know that my child has a new site and new insulin (be gentle with them!) or that they are stressed (be aggressive with the insulin!)..or that they might be coming down with illness (ditto..aggressive!  Raise the basal rate by 160%!).  Sometimes I just have insight from home that they need to form an action plan for the day.  

I'm not a doctor.  I just pretend to be a pancreas..and try to mimic it's every move.  And pin those moves into charts.  Because control (and a chart!) makes me happy.  And everyone knows if Momma's happy..

Are you still awake?  Did you get Math Brain Fog?  WooHoo!  Class dismissed!  Go forth and color with new crayons!! : )
Or run around in your robe with a naked chest!

Or eat Cheerios on my new chair!
I love y'all.  Or I wouldn't have taken all those crazy pictures of charts.  And allowed you into my control-y, chart-y world.  For reals..it's Friday night!  Hugs!
 
Make every effort to add to your faith goodness; and to goodness, knowledge; and to knowledge, self-control; and to self-control, perseverance; and to perseverance, godliness; and to godliness, mutual affection; and to mutual affection, love.
2 Peter 1:5-7

Sunday, July 20, 2014

Almost Home, Hooray!

Just completed my sixth pump site change!  The beach was kind to us this year. : )  Clay swam in the hotel pool tonight (which always waterlogs his stickers!), so it pulled off when he was changing into his jammies.  Oops.

We traveled all day back toward home..we are in downtown St. Louis, Missouri tonight.  The plan was for Ches to take the boys to the St. Louis Cardinals vs. Los Angeles Dodgers at 7:05.  It was televised on ESPN, and he thought they'd love it (Clayton Kershaw was pitching, and they think he is the best in the league!).  Problem is..we were in Wheeling, West Virginia this morning..and it takes some skill to plan an almost 9 hour drive!  with stops and meals!  We did make it to the hotel by eight, but he was tired.  They all were.

I got Carter a bath (had to have the fix-it-guy come repair the drain so it'd hold water!) and got him to sleep.  Ches took the big boys down to swim for a little while.  Then I traded Ches after the baby was sleeping well.  It was small and splashy down at the pool!  Mary Claire just hung with me.  She wasn't wanting to get into the small football game going in the tiny pool. ; )

My entire family is just sooo excited about being back home!  It's been a good trip, and as usual, they've all adjusted to traveling, driving long distances, and all sleeping together.  I'm thankful it's possible honestly.  It makes for good memories.

We played football in an empty church parking lot today next to a gas station.  I think it was in Illinois.  It'll be a good memory for us.  I loved watching Clay and his daddy throw the football..so many awesome throws and catches!

We've watched nearly all the dvd's we loaded into my little (old CD) notebook!  Is that even possible?  Mary Claire has watched almost all of season one (6 discs!) of Little House on the Prairie!  We've seen lots of Bubble Guppies, Curious George, Veggie Tales, and I'm so thankful the big kids haven't complained!  (I'm actually surprised they lay back and watch it, ha!)

We are still deciding about going to the City Museum tomorrow with the kids before we leave town.  It's awesome, but we all really want to just get home (and they've already been a handful of times).  They are dying to play outside at our house! : )  We don't know whether to let them in on the vote.  Hmm..six people make it a harder deliberation!

Either way, we'll sleep in our own beds, water our own flowers, and eat at our own HOUSE!!!  Exciting stuff.  Nothing like being away to make you long for home!  I'm so glad the kids miss it and finally feel like it's home.  We've kinda felt like nomads for a while. ; )

Hope you are sleeping in your own warm bed!

You will be blessed when you come in and blessed when you go out.  Deuteronomy 28:6